In this guide 3 sections
The discharge conversation is one of the highest-stakes ten minutes in healthcare, and it usually happens while your parent is tired, you are relieved, and the nurse has four other patients to discharge before shift change. Preparation is the only defence. Print this, or keep it on your phone, and do not let the door close until you have answers.
The twelve questions
- 1.What was the diagnosis, and what actually changed during this stay? Ask for it in plain words, and ask for the discharge summary to be sent to the primary care doctor and, if permitted, to you.
- 2.Which medications are new, which were stopped, and which changed dose? Ask for a single reconciled list, and ask specifically about anything that was in the cabinet at home and is not on the list.
- 3.Which follow-up appointments are needed, by when, and who is scheduling them? “Follow up with cardiology in one week” is not an appointment. Ask whether the hospital will book it or the family must, and get the phone number either way.
- 4.Has home health been ordered? If so, which agency, when is the first visit, and what will they be doing? Ask the agency’s name and number, and confirm they have received the referral.
- 5.What equipment does she need at home, and who is supplying it? Walker, commode, shower chair, hospital bed, oxygen. Ask whether it will be delivered before or on the day of discharge, and from which supplier.
- 6.What warning signs should we watch for, and which ones mean call the doctor versus call 911? Ask for the specific signs for her condition, written down.
- 7.Who do we call at 9pm on Saturday? Get a number that will be answered after hours, not just the clinic line.
- 8.Was this stay inpatient or observation? It affects whether Medicare will cover a skilled nursing facility afterwards. If observation, ask why, and ask whether the status can be reviewed. The hospital must give a written notice (the MOON) if observation lasted more than 24 hours.
- 9.What are the diet and activity restrictions, and for how long? Low sodium, thickened liquids, no lifting, no driving, no stairs. Each one changes what the family has to arrange.
- 10.Has her primary care doctor been told she was here? Often the answer is no. Ask that the summary be faxed today, and call the office yourself tomorrow.
- 11.What do we need to do in the first 48 hours? Ask the nurse to list it: which pills tonight, who is coming tomorrow, what to check.
- 12.If we do not think she is ready to go home, what are our options? You have the right to an expedited appeal of a Medicare discharge. Ask for the Important Message from Medicare notice and how to contact the Quality Improvement Organization (QIO). The hospital must tell you.
Who to ask
The discharge nurse can answer most of these. The case manager or discharge planner handles home health, equipment, facility placement and appeals. The hospitalist or attending physician is the one for medical questions and for the medication rationale. If the answers you get are vague, ask to speak to the case manager by name, and ask the nurse to page the physician before discharge. That is allowed. Families are often reluctant to slow things down. Slowing down by an hour is worth it.
What to do with the answers
Put them in one place: a folder, a shared note, a document the family can see. The discharge summary, the medication list, the appointment dates, the agency and supplier names and numbers, the warning signs and the after-hours number. Then, over the next 72 hours, check each one: did the agency call, did the equipment come, are the appointments booked, do the pills at home match the list. Most readmissions in the first month come from one of these quietly not happening.
Questions families ask
Can we refuse to take our parent home if we think she is not ready?
You can request an expedited appeal of the discharge through the Quality Improvement Organization, and Medicare covers the stay while it is reviewed. The QIO decides on medical readiness. If the issue is that home is not safe or nobody is there to help, that is a case management problem, and the case manager should be helping arrange home health, equipment or a short rehab stay.
Why does it matter whether the stay was inpatient or observation?
Medicare only covers a skilled nursing facility stay after at least three consecutive inpatient days. Observation days do not count, even if she was in a hospital bed the whole time. Observation stays also bill differently. Hospitals must give written notice of observation status lasting more than 24 hours.
Who books the follow-up appointments?
It varies by hospital, and the assumption is often that the family will. Ask directly for each appointment. Follow-ups within 7 to 14 days are the ones that prevent readmission, and they are the ones most often missed.
What if home health was ordered and nobody has called?
Call the agency yourself using the number the hospital gave you, and confirm they received the referral and when the first visit is. If they have not received it, call the hospital case manager. Home health agencies are supposed to make first contact within 48 hours; it often does not happen without a nudge.
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